From HealthLinks by Colin McCandless
Every Zebra’s Stripes Are Different: Victory Over A Rare Type Of Cancer
For Charleston resident and cancer survivor Roger Jones, his journey to beat a rare form of the disease ultimately led him to embark on several overseas trips to Germany to receive a novel treatment not yet approved in the United States.
Jones was diagnosed with neuroendocrine cancer in 2005. It started in his small intestine and spread to his liver. Neuroendocrine tumors are rare – approximately 12,000 people are diagnosed with neuroendocrine cancer in the U.S. every year, and it affects roughly 6 in 100,000 people worldwide.
The tumors can occur anywhere on the body where there are endocrine cells, though they most commonly form in the GI tract, lungs and pancreas. “It contrasts to carcinoma in that it most if the time metastasizes, and the most common place it metastasizes is the liver,” explained Jones, who founded and owns the real estate development company Companion Associates, Inc.
Fergus Falls Journal Review of THE FINAL VICTORY